UAB Researchers Create Culturally-Based Protocol For Palliative Care
Researchers at the University of Alabama at Birmingham have created the first culturally based protocol for patients facing end-of-life care. Ronit Elk is a professor in the Division of Gerontology, Geriatrics and Palliative Care at UAB. She has spent her life living in different countries. Once she moved to the U.S., Elk said she noticed the lack of respect for cultural differences for the nation’s sickest minority patients, particularly African Americans.
What was the most notable cultural difference?
For Black patients and their families going through end-of-life care, the concept of hope and miracles is key. Physicians are primarily trained as scientists to read the physical symptoms that are occurring. Black patients and families who believe that there is always hope and it’s in God’s hands, they understand yes, you’re the physician, but you are not the decider. It is God that decides whether my loved one is going to live or die. And it’s caused a lot of clashes with physicians and family members where physicians are often saying to patients’ families, you’re not really accepting that the person is going to die. There’s no way they can live. And the family is saying it’s in God’s hands and a miracle can happen. And somehow that’s a very difficult thing for many physicians to accept.
What are the consequences of treating everyone the same way in palliative care?
Here’s the interesting thing, palliative care physicians and clinicians are probably the most compassionate human beings on this planet. They are taught that you go in and you do exactly what the patient wants. However, what isn’t taught in America is that different people’s culture impacts that. Whenever somebody has a loved one who is very ill, whenever somebody is dying, it is always viewed through their own cultural lens. And that part has never been taught. And so there’s a simple lack of understanding.
Why were minority patients over-looked in models of end-of-life-care?
The model that was developed was based on the white middle-class model. This model is very wonderful if you’re white, middle class and Christian. It is most inappropriate in many cases if you’re not white or you’re not middle class or if you’re not Christian. So why it’s so difficult to understand that different cultures may look at death, life, illness differently; I have no idea. I think maybe in America we’re not taught enough to understand different cultures. But we’re doing a lot of studies with people from other countries, three in Africa and some in other countries, because over there, people know “if a model is for white middle class people, that’s not going to work for my people. I want to see what’s really going to work for our community.”
How do you get hospitals on board with this new protocol?
So the first thing we have to do is to prove that it’s very effective. What we’ve shown is that it’s feasible and it can be done. So we are simultaneously developing trainings so that we can train the physicians who won’t push against it, but will rather embrace it and it will be accepted in hospitals.
Editor’s Note: UAB holds WBHM’s broadcast license, but our news and business departments operate independently.
This interview has been condensed and edited for clarity.
This Christmas I’ll be grieving. Here’s how I’ll be finding joy.
Since her husband's death, newscaster Windsor Johnston has been looking for ways to recapture joy and continue her healing journey — one that's taken her to a place she'd never expected.
I discovered one way to fight loneliness: The Germans call it a Stammtisch
Modern life can be lonely. Some are looking to an old German tradition – of drinking and conversation – to deepen connection through regular meetups.
College students get emotional about climate change. Some are finding help in class
A recent survey finds that more than half of young people aged 16-25 are highly worried about climate change. Some universities are now trying to help them navigate those emotions in class.
On tap for the holidays: A blend of multicultural drink traditions and fond memories
For this year's All Things Considered holiday cocktail interview, we visited Providencia in Washington, D.C., a bar that brings its owners' personal stories to life.
Two US Navy pilots shot down over Red Sea in apparent ‘friendly fire’ incident
Two U.S. Navy pilots were shot down Sunday over the Red Sea by apparent "friendly fire", the most serious incident to threaten troops in over a year of America targeting Yemen's Houthi rebels.
Party City files for bankruptcy and plans to shutter nationwide
Party City was once unmatched in its vast selection of affordable celebration goods. But over the years, competition stacked up at Walmart, Target, Spirit Halloween, and especially Amazon.
